Latest blog post

How One Heroic Woman Got Medicare To Change ID Card Numbers

Her name is Eileen(compromise is no last name) and she really didn’t want me to mention her but I insisted.  I told her what she had accomplished was nothing short of a miracle.  She didn’t want me to use her name because she will humbly tell anyone, she only did what had to be done…

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Latest podcasts

Update From The Rare and Undiagnosed Communities

Mary Elizabeth Parker returns to update listeners on the what’s happening in the world of rare and undiagnosed diseases.  She has spent time at NIH and with the leading researchers in the area of genetics and rare diseases.  She will also update us on her organization U R Our Hope.  Also, appearing on the show is Deanna who tell us her story of searching for a diagnosis.