Latest blog post

I Have Cancer

I know it has been a long time since I wrote on my blog.  I have cancer and it took the wind out of my sails.  I was diagnosed with Multiple Myeloma last June.  For many months before the diagnosis, I was tired and generally didn’t feel good.  Of course, I kept pushing forward thinking…

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Latest podcasts

Update From The Rare and Undiagnosed Communities

Mary Elizabeth Parker returns to update listeners on the what’s happening in the world of rare and undiagnosed diseases.  She has spent time at NIH and with the leading researchers in the area of genetics and rare diseases.  She will also update us on her organization U R Our Hope.  Also, appearing on the show is Deanna who tell us her story of searching for a diagnosis.