My Heart Breaks: Too Many With Cancer

I turned on my computer and there was an email from an a past client.  As I read the email, my heart began to break.  She had breast cancer that had metastasized to the bone.  She was wondering if I could help her.  She didn’t have very good insurance as I remembered.  She had been…

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How I Learned The Lesson Of Patience From My Client

For those who have read my blog posts in the past, you may be aware I don’t have much tolerance for long wait times at a doctor’s office.  I think if a doctor is behind, the office staff, nurse or doctor should inform a person of the approximate wait time and give continuous updates. There…

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Be An Empowered Patient: Ask Questions

I just returned from  accompanying a client to her initial radiation oncology appointment.  My client has breast cancer and has gone through chemotherapy and surgery.  Next step radiation. I have watched her navigate this journey with class, dignity, integrity and LOTS OF QUESTIONS.  She has never agreed to proceed with an any aspect of treatment…

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How My Client Taught Me About Courage

I have written Allan’s story before in several blog posts with his permission.  I became involved because after two years, the local neurologists were unable to find a cause for his progressive neurological disease and the family needed help.  He started with dizziness and progressed to vision/ hearing loss, and muscle weakness.  We went to…

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I Searched My Problem on the Web :My Doctor Thinks I’m Nuts!

I was at an appointment with a client when a medical professional  cautioned him to be wary of the internet sites on his disease.  The reasoning was, the sites sometimes only told the negative side and it wasn’t necessarily factual.  My client was young, computer literate and had been using the web to get a…

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A Day At Chemo

Here I am with a client and a friend at Beth Israel Oncology Chemotherapy center.  My  client has breast cancer and is receiving bimonthly chemo.  There is usually several of us here with her.  We say we are her entourage.  It makes a difference.  My client says to tell everyone that it is important to…

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An Advocate’s Tale: Lessons From My Clients

Yesterday I spent the day with Allan while he got his chemotherapy and steroid infusion at his oncologist’s office.  The office has a large separate designated infusion room with 10 semi comfortable recliners.  Once a week Allan goes for his steroid infusion and monthly also receives chemotherapy.  The chemo day takes  six hours or more.…

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