How My Client Taught Me About Courage

I have written Allan’s story before in several blog posts with his permission.  I became involved because after two years, the local neurologists were unable to find a cause for his progressive neurological disease and the family needed help.  He started with dizziness and progressed to vision/ hearing loss, and muscle weakness.  We went to…

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Eating Breakfast While Reading My New Health Insurance Benefits Booklet

My husband rolled his eyes when he saw me at the breakfast table thoroughly enjoying the reading of my new health insurance benefits booklet.  His comment was, “You are probably the only person who reads that from cover to cover.”  Yes, I do and I tell people it is important to read and know your…

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Advocates: Connecting the Dots For Optimal Care

Patient advocates are experts at connecting the dots in healthcare.  What may seem daunting to patients and families is the business of advocacy.   A client said to me once, ” trying to get through the system from appointments to insurance issues makes me dizzy”.  There are so many dots to connect for patients, the whole…

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Conversations With Danielle, Caregiver and Social Worker

Danielle is the caregiver for a client of mine.  She calls me often to sometimes just chat and other times to vent about her frustrations with the healthcare system.  She has spent the last four years assisting her partner receive the care he needs.  It hasn’t been easy at times.  Her partner has needed multiple…

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Hope and Healing: A Client’s Journey

This entry is about my joy in this season at witnessing the slow but steady healing of  my client Allan. I have written about  Allan and his journey to get a diagnosis and treatment for three years.  I blogged our trek to Mayo Clinic and finally getting answers.  Allan’s treatment included high dose steroids for…

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The Amazing Caregiver: A Short Story of Commitment

Being a caregiver for a chronically ill person is a full time job.  It can take all of your emotional and physical energy.  If a caregiver is lucky enough or has the right insurance, there maybe some support in the home like a home health aid to assist with personal care. Caregivers never know what…

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A Caregiver, Insurance Termination and Tears

Yesterday I got a call from the wife and caregiver of my client who I went to the Mayo Clinic with in July for an undiagnosed neurological disorder.  With a diagnosis and treatment given, he has been receiving a radical treatment.  There seems to be some subtle yet positive changes.  The treatment is for a…

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Mayo Clinic: The Visit

I have to start by saying The Mayo Clinic is the most amazing medical center I have  experienced.  The focus is  truly patient centered.  It is not just lip service like most specialty centers.  The physical lay out is enough to take your breath away.  The buildings are named after donors like Guggenheim, Hilton and…

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A Trip to Mayo Clinic

Today, I flew  to Minneapolis to meet a client to accompany him and his friend to Mayo Clinic.  For my client, it is a day of hope that someone will  finally be able to diagnosis his unknown neurological disorder.   Two and a half years ago, he woke and felt dizzy.  The dizziness continued and…

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