Living Long Doesn’t Mean Living Well

I recently read one of the best articles on aging and healthcare in our soceity by Micheal Wolff in The New Yorker.  The name of the article is “A Life Worth Ending”.  http://nymag.com/news/features/parent-health-care-2012-5/ .  It is the story of caring for an aging parent and how the dying process was drawn out without any input from family.…

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Travel and Eats: Hints for Airline Travel in a Wheelchair

Linda Winkler Garvin is a guest blogger .  This article is great information for anyone wheelchair bound traveling by air. Having assisted my parents with their airport travel, I frequently came across a few issues from ordering a wheelchair in the airport, to going through security, which taught me to be as prepared as possible…

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Hope and Healing: A Client’s Journey

This entry is about my joy in this season at witnessing the slow but steady healing of  my client Allan. I have written about  Allan and his journey to get a diagnosis and treatment for three years.  I blogged our trek to Mayo Clinic and finally getting answers.  Allan’s treatment included high dose steroids for…

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The Amazing Caregiver: A Short Story of Commitment

Being a caregiver for a chronically ill person is a full time job.  It can take all of your emotional and physical energy.  If a caregiver is lucky enough or has the right insurance, there maybe some support in the home like a home health aid to assist with personal care. Caregivers never know what…

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An Advocate’s Tale: Lessons From My Clients

Yesterday I spent the day with Allan while he got his chemotherapy and steroid infusion at his oncologist’s office.  The office has a large separate designated infusion room with 10 semi comfortable recliners.  Once a week Allan goes for his steroid infusion and monthly also receives chemotherapy.  The chemo day takes  six hours or more.…

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Medical Assistance Terminated by RI for Disabled Client

The state of Rhode Island determined my wheelchair bound, chemotherapy receiving client with a  neurological disorder should be terminated from his Blue Chip medical assistant plan.  The computer generated form letter was dated September 17, 2010 and was received by the family on September 20, 2010.  All services are to end on September 30,2010. Reason…

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Mayo Clinic: The Visit

I have to start by saying The Mayo Clinic is the most amazing medical center I have  experienced.  The focus is  truly patient centered.  It is not just lip service like most specialty centers.  The physical lay out is enough to take your breath away.  The buildings are named after donors like Guggenheim, Hilton and…

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